Debbie Smart was preparing to relocate to Lesotho, Africa, in June 2005 when she experienced sudden paralysis and loss of sensation from the neck down. This was found to be the result of a neurological lesion and she was diagnosed with multiple sclerosis.
Her plans of moving to the tiny nation of Lesotho in the continent’s south to work with her husband in aid and development hung in the balance. Undeterred by her diagnosis, Debbie continued planning.
“I was still experiencing cognitive difficulties, partial paralysis and loss of balance, but in early 2006 we decided to go to Africa anyway,” she said.
Husband Aaron and children Jesse, 6, and Jordana, 4, (now 10 and 8) supported their brave mum. The family arrived in the capital city of Maseru and began working with Love in Action Lesotho (a local church initiative), helping families in need. Debbie battled both her children becoming very ill and her own relapsing MS symptoms, all while giving her time every day to those around her.
140 orphans and other vulnerable children benefitted from various community based projects, including support with food security, education, housing and health care. About 40 orphaned teenagers, primary breadwinners for their families, are now engaged in an income generation scheme making jewellery.
Debbie says her own struggle with MS became a way in which she could relate to those battling HIV/AIDS that she and her family were serving.
One of the primary goals of the organisation Debbie and her family volunteered with is to avoid sending children to orphanages. Instead, the community is empowered to support those youngsters in need and keep a family model in tact. Her vision is similar to ours at MS Queensland, where we strive to give people with MS every opportunity to live independent and dignified lives.
“Living in Lesotho the past four years has been a life-changing experience. Working with people affected by poverty and AIDS has made me realise that life is a gift we must use well, no matter what our challenges may be.”
Debbie Smart featured on the cover of the latest MS Life magazine. Download an electronic copy here!
